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| Comment added by : PAM on the 15 Nov 2007 at 22:54pm |
| Hey Stephanie, you sent me a message on my story a while back, sorry about getting back so late but I had another child in May of this year and as my 3rd and last child she also was born with bilateral club feet. I still don't know why, but the last time when my son (the 2nd child) was born, genetics doctors told me that it's within the parents genes combined together or something that this happens, but it's still a mystery to me. She's about 4months now and were going thru series of casts now until our doctor decides to do surgery in her 6th or 7th month. Take care and if you want to talk some more my email is aspirante23@yahoo.com |
| Comment added by : Christi on the 12 May 2007 at 00:41am |
| Hello. I was reading Cathleen Gallagher's story and wonder if she will even check this, but thought that I might add in this bit of information. I myself have club feet and am in my 30's. Living with this condition has been a roller coaster of emotion, but I would say to each of you...stay strong for your little ones. My parents are my rock and their emotional strength and determination are the reason that I was able to play soccer, softball, volleyball, swim, dance...you name it!! The doctors were very discouraging back then and as it turns out, there still have not been a whole lot of developments to help us out. What I do suggest...and it is so simple...every day, twice if possible, have your little one, take 10-15 minutes and stretch their tendons. My mom used to have me stand on our elevated fireplace, hang my heel off the back and stretch up and then back down..really allowing the stretch to be felt on both the upward and downward stretch. You want to make sure to keep the tendons as active as possible. It makes such a difference in the healing and mobility of your feet! :) Oh..and never lose your Faith! God is Good...and he never gives us more than we can handle! God Bless! One more thing...regarding the surgery that is mentioned by Cathleen...I too was offered this surgery in my teen years, but didn't end up going through with it because of the success/failure ratio. I would definitely ask a lot of questions before facing another surgery. It didn't make sense for me at the time because it would have really slowed me down (in my teens), but if it will significantly improve your daughters condition, it could be worth it! :) Good luck to you! |
| Comment added by : Amy Hoffman on the 05 May 2007 at 20:47pm |
| Cathleen, My son, who is 5 1/2 now, had that surgery at 3 1/2 and did fantastic. Although I delt with some static from family that it seemed very aggressive, I am so glad I did not wait. He too, went through a growth spurt and it was like overnight that his foot changed. Dont get me wrong, it was a very long 6 months but now his foot looks wonderful. Can you give me any input on how you handle shoes. We have a whole size difference almost a size and a half. Do you know of companies that sell 2 different size shoes for the price of one? (besides nordstrom?) thanks and I hope I helped. |
| Comment added by : jamie steward on the 26 Apr 2007 at 11:10am |
| I feel your pains. I have 4 children and only my two middle children has bilateral clubfeet. they both went through the whole casting thing ang also had to endure 3 surgeries each and possible more to come in the future. Take care to all of you |
| Comment added by : Liliya on the 10 Apr 2007 at 19:50pm |
| my daughter was born with bilateral club feet.she was casted only at 18 days old.now she is still casted and our doctor talks about surgery later on.she is casted for 10 weeks already.we saw that her feet look much better but they are not flexible as they should be. i am really afraid of any surgery, but i want the best for my daughter.am i doing good by allowing this operation? |
| Comment added by : Kim Barnett on the 22 Mar 2007 at 11:17am |
| My 4 1/2 yr old daughter was also born w/ bil. club feet. The doctors at Scottish Rite in Texas used the Ponsetti method on her also. My story is similar to Cathleen Gallaghers, my daughter started showing signs that her right foot was starting to turn inwards and she bagan tripping more and more. Unfortunatly the doctors said our only options would be to correct it with surgery. She had this done this past January. We are still not sure we made the correct decision. She had her casts removed at the end of February and now she walks with a limp. We are unsure if she will have this limp for now on or if it will get better with time. We just hope that her left foot doesn't start turning in also. If anyone would like to respond or ask questions about the type of surgery I will gladly return with a response. |
| Comment added by : Amy Weaver on the 12 Mar 2007 at 00:51am |
| My son was born with bilateral club feet that needed surgery at 6 months old. He had several casts prior to that surgery. He's now almost 8 years old and need to have surgery on both feet. They want to do 3 procedures to both feet. One is to move the tendon on the top of his foot, another is to release the fascia on the bottom of his foot and the third is to do an osteotomy by removing a piece of bone from the outside of his foot and placing it on the inner aspect. I don't look forward to this but finding shoes to fit his feet is becoming more of a problem. he also has pain in his feet at times. I hope this surgery helps him. |
| Comment added by : carrie on the 04 Mar 2007 at 23:06pm |
| I have a one year old who was born with bilateral clubfeet. She had casts at 4 days old for 10-12 weeks and then had the achilles tendon clipped and was in casts for another 3 wks. After that she went right into the brace for 23 hrs. a day until she was 6 mos. old. She now only wears the brace at night. She is doing awesome and just started walking. I am not sure what the future holds for her feet but God will handle all of it! We live in Dallas and thank God we have the Scottish Rite Childrens Hospital here in town! That place is amazing and I hope that all of the children are getting the Ponsetti Method when they are treated. Bless ALL of your children. I do not consider this to be a problem, it has been a huge blessing in our lives. When we go to our 3 month appts. at the hospital, we see soooo many children with such more dibilitating disabilities, we are all lucky to only have clubbed feet! Count your blessings! |
| Comment added by : Jaime Nelms on the 27 Feb 2007 at 14:23pm |
| My son was born with bilateral club feet. He was casted at three days old, had surgery at three months and he now wears AFO's during the day and D.B. splints at night. He just turned one and seems to be doing fine. We live in Odessa, TX and there is not a group that gets together, so this is great that you can communicate with others. He will go for a check up in 6 months and we will go from there. I praise God for the miracle He has given me and would never change a minute of it. |
| Comment added by : Cathleen Gallagher on the 18 Feb 2007 at 12:26pm |
| My daughter Emily was also born with severe bilateral club foot. She had surgery at 8weeks old and casted for 3months. She then had the dennis brown bar until she was a year old. She responded great and always had good yearly check ups. However she is now 5 1/2 and her right foot is starting to bother her when she runs. She told me she tends to trip because her foot turns in and then her ankle bother her. She also is much tighter and tends to walk on her toes with her foot turned in more then the left side. She was not like this 6 months ago. She apparently had a growth spurt and this may be the reason why her one foot is now showing signs again. I was told when she was an infant that sometimes the surgery may need to be repeated around 4 or 5 yrs old because of growth. I always worried and hoped she would not need further surgery I was told by two doctors to consider surgery on her right foot. They told me they would transfer muscle from the top of her foot to the outside to pull the foot back to normal as well as loosening the heal cord again to increase range of motion. I dont want to put her through this but I also want to do the best thing for her. nothing is garenteed to work. Has anybody had this kind of surgery??? If so, What was the outcome? I can't find any info on the web about this. Thanks for your help. Cathleen |
| Comment added by : SUSAN VAUGHAN on the 16 Feb 2007 at 10:17am |
| ive got a 11month old son who has clubfoot in his right leg |
| Comment added by : brandy on the 06 Feb 2007 at 13:24pm |
| my 5 year old daughter born with severe form of club feet had casts from birth to 7 months and just had another surgery 10 weeks ago has been alomg hard struggle but we manage 3hour drive just to go to app |
| Comment added by : Denise on the 01 Feb 2007 at 14:29pm |
| My son was born with bilateral club feet.He was casted from birth to 3 mos, operated on at 4 mos, casted til 7 1/2 mos. Went for yearly checkups for years.He is a very active 16 year old now. His feet have never held him back and nobody knows he had surgery unless he tells them.He plays rugby now and is into body building. His club feet are just a chldhood memory. We are greatful for his doctor and the prayers we received. I thank God for this lesson in faith! |